Cranial Remolding Orthosis

ANSWERS TO COMMON QUESTIONS
by Katie Willison, CPO
GHS Prosthetics and Orthotics

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What is deformational plagiocephaly?
Deformational (or positional) plagiocephaly is an abnormal head shape caused by external forces.  There is typically an area of excessive flattening in one or more sides of the skull, and increased prominence in other areas of the skull.  The abnormal shape may be present at birth from conditions or positioning within the womb, or it may begin to appear after birth in the first few weeks or months of life.

What are other kinds of unusual head shapes?
Deformational Brachycephaly appears as a central flattening on the back of the baby’s head.  The head is also very wide.  Often, the height of the head is excessively high in the back.  Asymmetrical Brachycephaly presents as a wide head that is also asymmetric.  Deformational Scaphocephaly appears as an elongated head.  It is common among premature babies because they are typically in a side-lying position.

What causes abnormal head shape?
The Back to Sleep Program has decreased SIDS related deaths by 40%; however, it is estimated to have increased positional cranial deformation by as much as 600%.1  The increased use of baby gear like car seat carriers, swings, and strollers that put the skull in constant contact with a flat surface also contributes to the increased prevalence. Torticollis, or neck muscle tightness, often causes or contributes to flattening of the baby’s skull because of positioning problems.

Are there other concerns beside cosmetic ones?
Severe shifts in ear and eye location caused by abnormal head shapes can adversely affect the child’s hearing and vision.

Will this resolve on its own? 
Cranial deformities present at birth should show improvement after a few weeks.  Cranial deformities caused after birth by positioning can sometimes be resolved with conservative treatments.  Increasing tummy time is the easiest way to do this.  Physical therapy may be required if torticollis is present.  If it has not improved by 4-6 months of age, a cranial remolding orthosis may be needed.

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What is a Cranial Remolding Orthosis?
A Cranial Remolding Orthosis is commonly referred to as a helmet.  It is a plastic and foam helmet used to reshape an infant’s head that was misshapen at birth or has become misshapen.  It directs head growth into a more appropriate shape during the time period of the most significant head growth before cranial bones begin to fuse and harden.

Are Cranial Remolding Orthoses effective?
A study released in 2015 used the largest number of participants to date for such a study with 4,378 participants.1  Helmet therapy was the first line therapy for 997 of these participants, and 94.4% of them achieved complete correction.  Of the conservative treatment group, 534 (15.8%) participants were eventually referred for helmet therapy because conservative treatment failed.  Of these, 96.1% achieved complete correction. 1

A study released in 2006 involving 224 infants found that 96% of subjects treated with a Cranial Remolding Orthosis showed improvement in head shape.2  In contrast, 70% of the infants in the control group (not getting treatment) showed improvement, but the amount of improvement was much less. 2

How long will my child have to wear the Cranial Remolding Orthosis?
Typical treatment time is about 4 months of full time wear (23 hours per day).  Certain factors affect this time frame such as age when the orthosis is fitted, severity of the abnormality, and compliance with the wear schedule.

If you have further questions about this topic, please stop by our CDS office next time you are in the building, or call 864 371-6750.

References used:

  • Steinberg, Jordan P., Roshni Rawlani, Laura S. Humphries, Vinay Rawlani, and Frank A. Vicari. “Effectiveness of Conservative Therapy and Helmet Therapy for Positional Cranial Deformation.” Plastic and Reconstructive Surgery Volume 135, Number 3. March(2015):833-842.
  • Plank, Laura H., Brian Giavedoni, Janet R. Lomardo, Mark D. Geil, and Andrew Reisner. “Comparison of Infant Head Shape Changes in Deformational Plagiocephaly Following Treatment With a Cranial Remolding Orthosis Using a Noninvasive Laser Shape Digitizer.” The Journal of Craniofacial Surgery Volume 17, Number 6. November(2006): 1084-1091.
  • “Does My Child Have a Problem?” Starband When nature needs a nudge. Orthomerica, 2015. http://starbandkids.com/. 1 December 2015.
  • Orthomerica Clinical Guide and Caregiver Guide

CDS Completes Grant Project from GWG

Contact:  Dana McConnell, Executive Director
(864) 331-1307
dana.mcconnell@cdservices.org

For Immediate Release

Center for Developmental Services
Completes Grant Project from Greenville Women Giving

(January 5, 2016):  The Center for Developmental Services (CDS) is excited to announce their completion of a large HVAC replacement project made possible by Greenville Women Giving (GWG), a philanthropic organization founded on the idea that women – when informed about philanthropy and needs in their community – can collectively make a real difference.

Last May, CDS received $65,272 to purchase several new 8.5 ton HVAC units to replace older ones that had surpassed their useful life and were in need of repair.  According to Dana McConnell, CDS Executive Director, “We are so grateful to GWG for supporting this critical project.  It’s such a relief to not have to worry about another band-aid solution for our heat this winter.”  CDS serves medically fragile and developmentally delayed children who are dependent on a safe, therapeutic environment.

About CDS
CDS is the largest multi-disciplinary treatment facility in the Upstate for children with disabilities and developmental delays.  In one location, children receive services in therapy, diagnosis, school placement, day care needs for the medically fragile, and a family support network.  The partnership is comprised of Clarity; Family Connection of SC; the Preschool Special Education Program of Greenville County Schools; KidVentures of the Greenville County Disabilities and Special Needs Board;, and four programs of the Greenville Health System: Developmental-Behavioral Pediatrics, Kidnetics, The Wonder Center, and Equipped for Life. CDS and its partners serve over 6,000 children and their families each year on property donated by the First Presbyterian Church at 29 North Academy Street in Greenville. For more information about CDS or its partners, visit www.cdservices.org.

About Greenville Women Giving
Greenville Women Giving (GWG) granted $541,218 to eight non-profit organizations at its ninth Annual Meeting on May 6, 2015.  In total, GWG has awarded over $3.6 million to Greenville County non-profits.  Membership is open to any woman who commits to donating $1,000 per year for 3 years to the collective fund.  To learn more about GWG, visit: www.greenvillewomengiving.org.

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Accessories Not Included

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by Dana McConnell, CDS Executive Director

Imagine you’re a proud parent awaiting the birth of your child.  The nursery room is ready, the clothes are neatly folded into piles by size, and children’s books are stacked beside the rocking chair. When the big day arrives, you head to the hospital with your overnight bag, and return home with a happy, healthy baby.

Unfortunately, life isn’t always like that.

Some infants need to spend more time in the hospital before going home.  Sometimes that home nursery will need space for a ventilator, feeding pump, or heart monitor.  Your baby is just as precious as you dreamed; he or she will just have more accessories than the traditional ball cap or hair bows.

As your child grows, some accessories will always be part of who they are, and some will be a memory viewed only in baby pictures.  Regardless, that child is still the beautiful, talented and gifted person they were meant to be.

The Center for Developmental Services is a special place where families can find multiple community services in one location for children and individuals with delays and disabilities. Our goal is to make the process of caring for children with special needs easier, simpler and more effective.

The Children’s Hospital of the Greenville Health System has four departments within CDS. Their Wonder Center is an on-site day care for medically complex children ages birth through six years.  Kidnetics evaluates and treats children from birth through age 21 for complex developmental disorders through physical, occupational, and speech therapy in our large gym, treatment rooms, and pool.  Developmental-Behavioral/Psychology Pediatrics provides evaluation and diagnosis of Autism, Down’s syndrome, Cerebral Palsy, and other genetic disorders. Prosthetics and Orthotics offers our families specialty bracing and cranial remolding orthoses for the correction of plagiocephaly.

Clarity brings a unique combination of audiology and hearing treatment, speech and language evaluation and therapy, and psychological evaluation for developmental and school focused challenges, such as ADHD and learning disabilities.

Family Connection is the parent-to-parent organization which links families of children with special healthcare needs and disabilities to resources, support, and education.

Greenville County Disabilities and Special Needs Board has a program called KidVentures that offers developmental assessments, service coordination, and early intervention.

And the Greenville County School District is also on-site to help evaluate and coordinate the best educational environment for your child.

All these services are centralized into one family-friendly location which serves 6,000 children each year.  That’s 6,000 children who are more prepared for school, more equipped with life skills, and whose families have been given the support and resources they need.

CDS still can’t guarantee that life will always go as planned, but our partnership can provide hope that more milestones will be achieved and more accessories can be stored away.

As we embark on a new year in 2016, many of us will make resolutions to improve the lives of ourselves and those around us.  I’d like to challenge readers to also improve the way we view disabilities by recommending these resolutions:

  • I will teach my child about inclusion, because all children love to play.
  • I will not look away if I notice someone has a disability, but rather smile and say hello.
  • I will consider hiring someone with a disability, because there’s more to people than what we see.

These small changes will embrace our differences and enhance our community.  We invite you to visit our facility and take a tour.  If interested, please call our office at 864-331-1300.

CDS Welcomes New Board Member, Ashley Taylor

Contact:  Dana McConnell, Executive Director
(864) 331-1307
dana.mcconnell@cdservices.org

FOR IMMEDIATE RELEASE

CDS Welcomes New Board Member for 2016

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Greenville, S.C.:
The Center for Developmental Services (CDS) is pleased to announce that Ashley Taylor has joined their Board of Directors for 2016. Ashley is the Director of Media & Public Relations at Bon Secours St. Francis.

A Greenville native, Ashley spent time in the Myrtle Beach area as a news anchor and reporter for the NBC affiliate WMBF-TV gaining valuable experience in the news business. In 2012, she moved back to her hometown to work in public relations at Shriners Hospitals for Children – Greenville. While at Shriners, Ashley provided extensive media coverage of heartwarming patient stories and medical advancements. “I am honored to have been elected to serve on the CDS board and I look forward to utilizing my skills to further their mission,” said Ms. Taylor.

“We are excited to have Ashley join our 2016 Board of Directors,” said Dana McConnell, CDS Executive Director. “Her experience with Shriners and now with St. Francis will enhance our outreach in the disability community.”

CDS board members are volunteers, and commit to a three-year term in support of individuals with developmental needs.

About CDS
CDS is a unique partnership linking individuals and families with multi-disciplinary services for developmental evaluation, treatment, education and support. The partnership is made up of Clarity; Family Connection of S.C.; Greenville County School District; KidVentures of the Greenville County Disabilities and Special Needs Board; and four services of the Children’s Hospital of the Greenville Health System: Developmental-Behavioral Pediatrics, Kidnetics, the Wonder Center, and Prosthetics and Orthotics. CDS and its partners serve over 6,000 children and families each year in one facility located on property donated by the First Presbyterian Church at 29 North Academy Street in Greenville. For more information about CDS or its partners, visit www.cdservices.org. You can also find us on Facebook, Instagram, LinkedIn, and Twitter (CDSpartnership).

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Grateful Blessings

by Dana McConnell, CDS Executive Director

It has been my privilege to serve the CDS staff, our partners and over 6,000 families this year. As I look back over the past eleven months, I am truly humbled by what we’ve accomplished together.

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We began the year with a landscaping makeover, a beautiful mural, and the mural garden, thanks to the Greenville Garden Club and students from St. Joseph’s Catholic School. The ladies from the garden club also held a special fashion show luncheon featuring one of the children we serve. Shortly thereafter, SANDLAPPER Securities hosted a special night at the hockey game with many of our families participating in the pre-game festivities.

As summer approached, our momentum didn’t slow down. We revealed a new logo, updated our brochures, and launched a new website. In July, the community gave us a huge vote of confidence when we were awarded our first ever Best in the Upstate for Best Child Development Center. This momentum continued right into our 15th year anniversary with week-long activities and lots of celebration. We also approved a new three-year strategic plan which gave us a road map toward new goals and challenges.

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In the financial arena, we received two significant funding grants: Greenville Women Giving and the JL Mann spirit week. Those two grants have re-defined what is possible at CDS, and allowed us to look toward the future needs for our families. In addition, we recorded a strong Eggs Benefit, our annual breakfast fundraiser, and enhanced our outreach program with Bon Secours St. Francis. The community’s passion toward funding our mission validates that what we do does make a difference.

Staff 2015

No leader can stand without a supportive staff, and to that regard, I must give credit to the wonderful team at CDS. I cannot imagine our organization without their contributions, or the continual support of our partners, board members, and the community. I am truly grateful for the collaborative effort of all of us working together.

CDS Receives Hollingsworth Grant

Contact: Dana McConnell, Executive Director
(864) 331-1307
dana.mcconnell@cdservices.org

FOR IMMEDIATE RELEASE

Center for Developmental Services (CDS) Receives Hollingsworth Grant

Greenville, S.C.  (November 20, 2015):  The Center for Developmental Services (CDS) has been awarded a $25,000 grant from the Hollingsworth Funds.  This gift will help CDS conduct a space utilization survey as part of their strategic plan initiatives.  CDS is a resource in the upstate where families who have a child with a disability can turn for help.  From diagnosis and evaluation to treatment and therapy, the CDS partnership exists to make the process of caring for children with special needs easier, simpler and more effective.

“We are so thankful for the wonderful support of the Hollingsworth Funds in awarding us this grant,” said Dana McConnell, CDS Executive Director.  “It’s exciting to begin our strategic initiatives which will ultimately help us to better serve our families.”
 
 
About CDS
CDS is a unique partnership linking individuals and families with multi-disciplinary services for developmental evaluation, treatment, education and support.  The partnership is made up of Clarity;   Family Connection of S.C.; Greenville County School District; KidVentures of the Greenville County Disabilities and Special Needs Board; and four services of the Children’s Hospital of the Greenville Health System:  Developmental-Behavioral Pediatrics, Kidnetics, the Wonder Center, and Prosthetics and Orthotics.  CDS and its partners serve over 6,000 children and families each year in one facility located on property donated by the First Presbyterian Church at 29 North Academy Street in Greenville.   For more information about CDS or its partners, visit www.cdservices.org. You can also find us on Facebook, Instagram, LinkedIn, and Twitter (CDSpartnership).

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Austin ILV

austin ilv2

by Dana McConnell, CDS Executive Director

I had the privilege of attending the Greenville Chamber of Commerce ILV last week in Austin, Texas.  The ILV is an Intercommunity Leadership Visit where several leaders in our community visit another city to learn how they have addressed similar issues regarding growth, business development, and talent recruitment.

The Chamber has organized other ILV trips in the past to places such as Pittsburgh, PA and Ireland, and each trip has provided an in-depth insight into what makes their community unique.  Austin was selected this time because they are experiencing tremendous population growth, much like Greenville. They have had to work through the challenges that also come with growth, like infrastructure, mobility, and affordability.  We wanted to explore how Austin continues to be so successful, while at the same time keeping its authentic character.

During the 3-day visit, my personal goal was to learn more about obstacles surrounding families with disabilities.  How has innovation, entrepreneurship, and talent recruitment shaped the landscape for those seeking employment?  What modifications have been introduced to building designs?  What policies are being implemented to keep urban living affordable?

Those answers were found among the passionate leaders in Austin as well as within our innovative leaders back home.  For talent recruitment, the Upstate is already making strides with employment.  The Walgreens Distribution Center in Anderson, SC is a wonderful example of training our under-utilized disability workforce.  In addition, the Greenville CAN initiative has an employment workgroup with plans to hold seminars for local business leaders.   Regarding building design, Austin has taken a creative approach that incorporates millennial, wellness, eco-friendly, and disability needs into active work spaces.  They also require that all new housing projects designate 25% of their units as affordable for those on a limited budget, such as teachers.

Greenville is a collaborative community, and not all cities can say that.  We are truly fortunate to have community leaders, businesses, and residents willing to discuss issues openly and work together for resolution.  This collaboration is our key ingredient for successful growth.

Growth is inevitable in the Upstate.  We can either prepare for it, or react to it.  Let’s choose to be prepared and welcome it.

Making a Difference

headshotby Dana McConnell, CDS Executive Director

I feel truly blessed to have the best job in the world. I have the privilege of coming to work each day knowing that I make a difference in the lives of 6,000 children and families with developmental delays and disabilities.

It’s not actually me who makes that difference, I know, but I’m part of a wonderful team of staff and partners who help create miracles. At CDS, our partners help children hear for the first time as they listen to their mother’s voice. They teach children to swallow who had previously only been fed through a tube. They help children sit up, stand, or walk, when their families were told it would never be possible.

These milestones happen every day among our families. I’m proud to share that CDS has some milestones of our own as well. We have re-designed our landscaping and added a beautiful mural to the building. We revealed a new logo, updated our brochures, and launched a new website. The momentum continued right into our 15th year anniversary with week-long activities and lots of celebration. We also approved a new three-year strategic plan which gave us a road map toward new goals and challenges.

Although these achievements pale in comparison to the milestones our children reach, they help to create that “special place” our families need when they enter a world they were not expecting. New parents may be told their unborn child has a rare genetic disorder. A family of twins is beginning to see developmental delays in one of their two children. A student who had always seemed to struggle in the classroom is finally diagnosed with dyslexia.

These are the stories I hear time and again when I talk with our families. They are my inspiration for doing what I do. This blog will be a glimpse of those stories that motivate us, new programs or services we offer, updates on donor engagement or volunteer opportunities, and other informative posts to keep you updated. The Upstate is fortunate to have a place like CDS, and I am grateful to be part of this amazing organization.

The future of CDS and our families is so inspiring! I hope you join us on our journey.

My CDS Story

headshot By:  Andrew O’Steen, Student Body President J.L. Mann High School

Growing up, I remember driving by CDS on the way to church and seeing the kites hung on the ceiling through a window, thinking “Why can’t I go to a cool place like that?”  As I got older, I never questioned what CDS was or what it did. And even though I rode by it at least once a week, I had no idea it would create such an impact on my life in the coming years.

Last April, five members of J.L. Mann’s student council were tasked with the job of choosing a charity for our 2015 spirit week campaign, and as we combed through the dozens of applications and brochures, CDS shined brightly. We saw the impact that CDS has on so many Mann families, and realized that choosing CDS would be a great way to give back to not only the over 6,000 children who attend CDS every year, but also the ones that walk the halls with us every day. It was upon further research when I realized that CDS was the place that I had driven by so many times, but never explored. Obviously, we were proud to choose CDS as our charity, and through the countless tours, meetings, visits, and conversations, I realized what an impactful place CDS is.

The staff has always been so welcoming to us and treats everyone with the same respect and care. Whether it’s Mr. Willie at the front desk or Mrs. Dana giving a tour, It becomes quickly evident that everyone is passionate about serving such wonderful children. These children truly are the heart of CDS, and were the driving force behind the hard work that student council members put in to spirit week. I have had the opportunity to hear and witness amazing accounts of achievement, love, and perseverance from them, and they show that no matter the circumstance or obstacle, anything is possible.

After months of meetings, planning events, working out logistics, and creating excitement, our spirit week was able to raise over $151,000, an amount that is only raised through a community that is passionate about the charity being served. CDS made it easy to garner such support from the community because of the inspiring miracles that happen here every day.

As I reflect upon spirit week, I think about how CDS was always close to me physically, but became so much closer to me emotionally when I learned about the work that it does and the lives that it changes. CDS is a gem to our community, and the people that it serves will be able to attest to this fact in a way that I never could. I’ve learned through this experience to always look into something that may be easy to overlook. Whether it is a building that you pass by every day or a person that may not be exactly like you, everything has a story; you just have to listen.